https://nova.newcastle.edu.au/vital/access/ /manager/Index en-au 5 https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:33798 Tue 15 Jan 2019 15:31:55 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:33796 'They are the priority' overarched two subordinate themes that emerged from participants' descriptions of the struggle with acceptance and finding positive meaning. Participants oscillated between conflicting feelings about their sibling with 22q11.2DS always taking centre stage. For example, they felt anger, guilt and resentment; yet, they also embraced patience, empathy and gratitude. Conclusions: This phenomenological study provides a foundation for future research relating to 22q11.2DS and fostering family wellbeing, particularly around acceptance and psychological growth. The siblings in this study actively withdrew from their family to allow prioritisation of their affected sibling. However, this does not mean that their needs should be overlooked. There are easily accessible resources to support siblings of individuals with disabilities, and it is important for health professionals and parents to consider these options.]]> Tue 15 Jan 2019 15:31:49 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:27451 Sat 24 Mar 2018 07:32:46 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:45784 Sat 05 Nov 2022 12:42:08 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:45536 Mon 31 Oct 2022 15:33:57 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:50975 Mon 14 Aug 2023 15:25:16 AEST ]]>